“RP The Ride of My Life”
This powerful documentary about Nancy and her family’s journey through many years of struggling with painful and debilitating symptoms with an unknown cause, eventually being diagnosed with an extremely rare autoimmune disease, Relapsing Polychondritis (“RP”), and ultimately finding the strength and courage to persevere with a purpose to raise awareness about RP, help others in diagnosis and support, and advance research efforts about this and other autoimmune diseases in pursuit of treatments and cures.
RP PATIENT SURVEY: AUTOIMMUNE AND COVID-19
When it comes to how the rapidly spreading coronavirus (COVID-19) is affecting people with vasculitis, medical experts agree there are more questions than answers – at least right now.
To address that concern, the Relapsing Polychondritis Foundation, the Vasculitis Foundation (VF), and the Vasculitis Patient Powered Research Network (VPPRN) have teamed up with partners in the Autoimmune Research Collaborative (ARC) to launch a new COVID-19 patient study.
We want to know your concerns. Please participate in the patient research survey: Autoimmune and COVID-19. Your participation will help researchers, clinicians and other patients better understand how people with relapsing polychondritis and other forms of vasculitis are dealing with COVID-19 / the novel coronavirus.
To get started, please go to: www.vasculitisfoundation.org/rp_vasccovid-19/
LATEST NEWS
Race for RP was represented by outstanding drivers and teams in the IMSA Michelin Pilot Challenge at Road America, driving awareness of relapsing polychondritis (RP).
The Relapsing Polychondritis (RP) Foundation has announced a generous gift to establish the Penn Relapsing Polychondritis Fund, which will support a unique partnership between the University of Pennsylvania RP Program and the National Institutes of Health (NIH) sponsored Vasculitis Clinical Research Consortium (VCRC).
A live webinar on novelties about the diagnosis and therapeutic management of relapsing polychondritis in 2020 by Professor Laurent Arnaud, held on 23rd April 2020 for ERN ReCONNET.
Collecting this data will advance the goal of standardizing definitions of RP to create uniform groups of patients with key shared features for clinical research and may also provide context to aid in diagnosis.
Race for RP driver, Neil “Neilio” Langberg, and his Scuderia Corsa teammates aggressively drove awareness of relapsing polychondritis (RP) with skill and determination in Round 2 of the Ferrari Challenge North America.
Race For RP on Social Media
Go, @CooperMacNeil!
.@CooperMacNeil has his eyes on the prize
Good luck, @KyleMarcelli!
We're GREEN! And we have drama already. Tune-in:
🖥️ http://YouTube.com/gtworld
⏱️ http://livetiming.tsl-timing.com/203806
📻 @SIRIUSXM 383 or 984 (App)
#GTCOTA | #GTWorldChAm
Qualifying complete at @DoningtonParkUK for tomorrow’s @BritishGT. @MiaFlewitt and @EuanHankey will start P6 overall and P1 in class in the No. 21 @BalfeMotorsport McLaren 570S GT4.
@skysportsf1 @DoculifeGlobal @RebellionTime @topazdetailing @VirtusLab #inception #RaceforRP
Qualifying is complete! P6 overall and P1 in class for Mia @FlewittRacing and @EuanHankey in the No. 21 @BalfeMotorsport McLaren 570S GT4 at @donintonpark for tomorrow’s @British_GT Championship race.
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Tune-in on Sunday 20 September, at 7:55 am ET on www.BritishGT.com/live to catch all of the action.
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@skysportsf1 @mydoculife @rebelliontimepieces @topazdetailing @virtuslab #inception
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#RaceforRP #RelapsingPolychondritis #BritishGT #GT4 #DoningtonPark
The 24 Hours of Le Mans is underway.
Good luck, Charlie Hollings and team, in the No. 62 Red River Sport Ferrari 488 GTE Evo!
#Repost
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Ready to go ✔️ LeMans 2020 🇫🇷 Excited to start on track tomorrow. @24hoursoflemans @fiawec_official #lemans #24 #WEC #ferrari #GTE #488 #WorldEndurance #racing
Tune-in today to follow Kyle Marcelli co-driving the No. 80 Racers Edge Motorsports Acura NSX GT3 Evo in the GT World Challenge America live from Circuit of The Americas. Details below.
Good Luck, Kyle and team!
#Cota #GTWorldChAm #GTCOTA #RaceforRP #RelapsingPolychondritis
Saturday schedule and tune in info •
💻 YouTube.com/gtworld
⏱️ livetiming.tsl-timing.com/203806
📻 @SIRIUSXM
