“RP The Ride of My Life”
This powerful documentary about Nancy and her family’s journey through many years of struggling with painful and debilitating symptoms with an unknown cause, eventually being diagnosed with an extremely rare autoimmune disease, Relapsing Polychondritis (“RP”), and ultimately finding the strength and courage to persevere with a purpose to raise awareness about RP, help others in diagnosis and support, and advance research efforts about this and other autoimmune diseases in pursuit of treatments and cures.
LATEST NEWS
In December of 2018, before Jennifer Dargan flew from her home in Montana to the National Institute of Health in Washington, D.C., she knew she wouldn’t be able to travel with her usual oxygen tank. “It’s like a little metal…
We are thrilled to announce that Jon Morley has officially joined the Race for RP team as a professional driver in our motorsports awareness program. Jon, who also coaches amateur Race for RP driver Neil Langberg with Scuderia Corsa in…
Grace Alarcon-Isla is worried about her son. When Adam was diagnosed with relapsing polychondritis three years ago, at the age of 15, his rheumatologist had taken charge and coordinated his care using a multidisciplinary approach. However, that changed when he turned 18.
When Rachel Wollan was diagnosed with relapsing polychondritis by a doctor near her home in Fairmont, Indiana, her first instinct was to take action before her appointment with a specialist a week later. “I’m a researcher,” she says. “I am…
Though all of her tests were coming back normal, Tedi LaMere knew that something was seriously wrong. First, she had issues with her heart that were so severe she had to travel from her home in Montana to Denver and…
EVENTS
Race For RP on Social Media
Please join us in welcoming Jon Morley to the Race for RP team of drivers. Jon will be racing this weekend at @WGI in the @IMSA @MichelinRaceUSA Pilot Challenge. #RaceforRP #RelapsingPolychondritis #AutoimmuneDisease #IMPC #IMSA
Jon Morley Joins the Race for RP Team, Further Driving Awareness About Relapsing Polychondritis -
Share on Social Media We are thrilled to announce that Jon Morley has officially joined the Race for RP team as a professional driver in our mo...
raceforrp.org
Congratulations to @Scuderia_Corsa for their P3 podium finish at the 24 Hours of Le Mans. It was a fantastic performance by @CooperMacNeil, @toni_vilander and Robert Smith, behind the wheel of the No. 62 Ferrari 488 GTE.
#LeMans24 #ForzaFerrrari #Ferrari #RaceforRP
In May, race car driver @KyleMarcelli was honored with the Champion Award from @AARDATweets for his advocacy work as an ambassador for #autoimmunedisease research and awareness. @RPASF_Official @AHNtoday #RaceforRP #Autoimmunity #Autoimmune
Kyle Marcelli - AARDA Champion Award Recipient
On May 11, race car driver Kyle Marcelli was honored for his advocacy work with the Champion Award from the American Autoimmune Related Diseases Assoc...
www.vidrise.com
A shout out to Scuderia Corsa ahead of this weekend's Sahlen’s Six Hours of The Glen at Watkins Glen internation, the third round of the Michelin Endurance Cup in the WeatherTech SportsCar Championship.
Race for RP driver Jeff Westphal is back with the endurance team co-piloting the WeatherTech Racing No. 63 Ferrari 488 with Cooper MacNeil and Toni Vilander.
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#Sahlens6HRS #ScuderiaCorsa #IMSA #RaceforRP #RelapsingPolychondritis Michelin Motorsport
We're looking forward to seeing our friends at Scuderia Corsa this weekend at @Watkins Glen International for the Sahlen’s Six Hours of The Glen, June 27-30 and the IMSA WeatherTech SportsCar Championship. Cooper MacNeil, Toni Vilander and Race for RP Driver Jeff Westphal will co-pilot the WeatherTech Racing No. 63 Ferrari 488 in this third round of the Michelin Endurance Cup Championship.
Good luck to the team and drivers!
#Sahlens6HRS #ScuderiaCorsa #IMSA #RaceforRP
www.scuderiacorsa.com/scuderia-corsa-continues-endurance-action-at-watkins-glen/
In our final Relapsing Polychondritis Patient Spotlight for the month of June, we learn how Jennifer wouldn't have been able to travel from Montana to the National Health Institute without a grant from Friends of Patients at the NIH - and the help of her daughter, Shaina. When you need help, who do you turn to?
Share this post, tag that person and tag Race for RP - "Relapsing Polychondritis". For each tag, $1 will be donated to Friends of Patients at the NIH (up to $10,000). For instructions on how to publicly share a Facebook post with your friends, go to raceforrp.org/howtoshare.
#RaceforRP #RelapsingPolychondritis
bit.ly/PatientSpotlight4