“RP The Ride of My Life”
This powerful documentary about Nancy and her family’s journey through many years of struggling with painful and debilitating symptoms with an unknown cause, eventually being diagnosed with an extremely rare autoimmune disease, Relapsing Polychondritis (“RP”), and ultimately finding the strength and courage to persevere with a purpose to raise awareness about RP, help others in diagnosis and support, and advance research efforts about this and other autoimmune diseases in pursuit of treatments and cures.
Grace Alarcon-Isla is worried about her son. When Adam was diagnosed with relapsing polychondritis three years ago, at the age of 15, his rheumatologist had taken charge and coordinated his care using a multidisciplinary approach. However, that changed when he turned 18.
When Rachel Wollan was diagnosed with relapsing polychondritis by a doctor near her home in Fairmont, Indiana, her first instinct was to take action before her appointment with a specialist a week later. “I’m a researcher,” she says. “I am…
Though all of her tests were coming back normal, Tedi LaMere knew that something was seriously wrong. First, she had issues with her heart that were so severe she had to travel from her home in Montana to Denver and…
On June 5th, Race for RP will launch its “Friends with RP” campaign, which will use patient testimonials and the power of social media to raise awareness of RP’s complex symptoms and provide financial support to facilitate treatment and research at the National Institutes of Health (NIH).
Relapsing polychondritis, a rare autoimmune disease, becomes Illinois most searched disease on Google, further bolstering the advocacy and awareness initiatives by Race for RP and RPASF.