“RP The Ride of My Life”
This powerful documentary about Nancy and her family’s journey through many years of struggling with painful and debilitating symptoms with an unknown cause, eventually being diagnosed with an extremely rare autoimmune disease, Relapsing Polychondritis (“RP”), and ultimately finding the strength and courage to persevere with a purpose to raise awareness about RP, help others in diagnosis and support, and advance research efforts about this and other autoimmune diseases in pursuit of treatments and cures.
LATEST NEWS
Grace Alarcon-Isla is worried about her son. When Adam was diagnosed with relapsing polychondritis three years ago, at the age of 15, his rheumatologist had taken charge and coordinated his care using a multidisciplinary approach. However, that changed when he turned 18.
When Rachel Wollan was diagnosed with relapsing polychondritis by a doctor near her home in Fairmont, Indiana, her first instinct was to take action before her appointment with a specialist a week later. “I’m a researcher,” she says. “I am…
Though all of her tests were coming back normal, Tedi LaMere knew that something was seriously wrong. First, she had issues with her heart that were so severe she had to travel from her home in Montana to Denver and…
On June 5th, Race for RP will launch its “Friends with RP” campaign, which will use patient testimonials and the power of social media to raise awareness of RP’s complex symptoms and provide financial support to facilitate treatment and research at the National Institutes of Health (NIH).
Relapsing polychondritis, a rare autoimmune disease, becomes Illinois most searched disease on Google, further bolstering the advocacy and awareness initiatives by Race for RP and RPASF.
EVENTS
Race For RP on Social Media
Congratulations to @Scuderia_Corsa for their P3 podium finish at the 24 Hours of Le Mans. It was a fantastic performance by @CooperMacNeil, @toni_vilander and Robert Smith, behind the wheel of the No. 62 Ferrari 488 GTE.
#LeMans24 #ForzaFerrrari #Ferrari #RaceforRP
In May, race car driver @KyleMarcelli was honored with the Champion Award from @AARDATweets for his advocacy work as an ambassador for #autoimmunedisease research and awareness. @RPASF_Official @AHNtoday #RaceforRP #Autoimmunity #Autoimmune
Kyle Marcelli - AARDA Champion Award Recipient
On May 11, race car driver Kyle Marcelli was honored for his advocacy work with the Champion Award from the American Autoimmune Related Diseases Assoc...
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We’re rooting for you, @Scuderia_Corsa!
1hr 30 min to go radio to @toni_vilander “we keep pushing, we have the car” #LeMans24
A big thank you to Pete, for setting up his sprint go kart with the Race for RP - "Relapsing Polychondritis" livery. Pete is a fantastic social media advocate for our motorsports awareness program, and this takes it to the next level. Go No. 55!
#RaceforRP #RelapsingPolychondritis
Congratulations to Scuderia Corsa for their P3 podium finish last weekend at the legendary endurance race, 24 Hours of Le Mans. It was a fantastic performance by Cooper MacNeil, Ferrari factory driver Toni Vilander and endurance driver Robert Smith, behind the wheel of the No. 62 Ferrari 488 GTE. Great job to the whole team!
#LeMans24 #ForzaFerrrari #Ferrari #RaceforRP
We love that red! Good luck this weekend at Road America.We're bringing back red for NTT IndyCar Series at Road America! What better way to show #ScuderiaCorsa heritage at such a historic track? Comment below if you're as excited as we are 👇
