“RP The Ride of My Life”

This powerful documentary about Nancy and her family’s journey through many years of struggling with painful and debilitating symptoms with an unknown cause, eventually being diagnosed with an extremely rare autoimmune disease, Relapsing Polychondritis (“RP”), and ultimately finding the strength and courage to persevere with a purpose to raise awareness about RP, help others in diagnosis and support, and advance research efforts about this and other autoimmune diseases in pursuit of treatments and cures.

RP Patient Survey

Please participate in a relapsing polychondritis (RP) patient-reported symptoms survey, which is being conducted by the National Institute of Arthritis Musculoskeletal and Skin Diseases (NIAMS) of the National Institutes of Health (NIH).

Your participation as an RP patient is critically important as it will further research! Please share this survey link with other RP patients and encourage them to participate.

The Relapsing Polychondritis (RP) Foundation and Race for RP are pleased to support the NIAMS survey, given it will help develop classification criteria and hopefully facilitate timely diagnosis.

The NIAMS survey is for RP patients who are at least 18 years old. Your responses are voluntary and confidential. You will not be compensated for your participation.

LATEST NEWS

Race For RP on Social Media

Join us with @AARDATweets for a one-hour webinar featuring panelists with a profound understanding of COVID-19 and its effects on the #autoimmune community.

Friday, April 3, 2020 | 2-3pm ET.

Register at: https://zoom.us/webinar/register/WN_F1gJdkVMTkCXht6WiscXUQ

#AutoimmuneDisease #RelapsingPolychondritis

Attention RP patients!
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The @NIH needs your help to better understand #RelapsingPolychondritis (RP).

Please participate in the patient-reported symptoms survey being conducted by @NIH_NIAMS.

Survey link: http://www.surveymonkey.com/r/NIHrpsurvey

#RaceforRP #NIH #Research

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¡Atención pacientes con Policondritis Recividante! Si tienes 18 años o más, por favor completa esta encuesta importante realizada por Los Institutos Nacionales de Salud.
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Gracias.
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Attention patients with relapsing polychondritis! If you are 18 years or older, please complete this important survey being conducted by the National Institutes of Health.
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Thank you.

Policondritis Recidivante Apoyo e Investigacíon POLICONDRITIS Policondrite Amigos
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Join American Autoimmune Related Diseases Association (AARDA) for a one-hour webinar featuring panelists with a profound understanding of COVID-19 and its effects on the autoimmune community.

Friday, April 3, 2020 | 2:00- 3:00 p.m. (Eastern)

Upon registration, participants will be invited to submit questions for our panelists.

Click here to Register: zoom.us/webinar/register/WN_F1gJdkVMTkCXht6WiscXUQ
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Attention RP patients!
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The National Institutes of Health (NIH) needs your help to better understand relapsing polychondritis (RP).
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If you have been diagnosed with relapsing polychondritis and are 18 years or older, please participate in the patient-reported symptoms survey which is being spearheaded by Dr. Marce Ferrarda of National Institute of Arthritis and Musculoskeletal and Skin Diseases.
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Survey link: www.surveymonkey.com/r/NIHrpsurvey
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THANK YOU to all who have completed the survey! Your support of RP research is greatly appreciated.
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