“RP The Ride of My Life”
This powerful documentary about Nancy and her family’s journey through many years of struggling with painful and debilitating symptoms with an unknown cause, eventually being diagnosed with an extremely rare autoimmune disease, Relapsing Polychondritis (“RP”), and ultimately finding the strength and courage to persevere with a purpose to raise awareness about RP, help others in diagnosis and support, and advance research efforts about this and other autoimmune diseases in pursuit of treatments and cures.
RP PATIENT SURVEY: AUTOIMMUNE AND COVID-19
When it comes to how the rapidly spreading coronavirus (COVID-19) is affecting people with vasculitis, medical experts agree there are more questions than answers – at least right now.
To address that concern, the Relapsing Polychondritis Foundation, the Vasculitis Foundation (VF), and the Vasculitis Patient Powered Research Network (VPPRN) have teamed up with partners in the Autoimmune Research Collaborative (ARC) to launch a new COVID-19 patient study.
We want to know your concerns. Please participate in the patient research survey: Autoimmune and COVID-19. Your participation will help researchers, clinicians and other patients better understand how people with relapsing polychondritis and other forms of vasculitis are dealing with COVID-19 / the novel coronavirus.
To get started, please go to: www.vasculitisfoundation.org/rp_vasccovid-19/
LATEST NEWS
The Relapsing Polychondritis (RP) Foundation has announced a generous gift to establish the Penn Relapsing Polychondritis Fund, which will support a unique partnership between the University of Pennsylvania RP Program and the National Institutes of Health (NIH) sponsored Vasculitis Clinical Research Consortium (VCRC).
A live webinar on novelties about the diagnosis and therapeutic management of relapsing polychondritis in 2020 by Professor Laurent Arnaud, held on 23rd April 2020 for ERN ReCONNET.
Collecting this data will advance the goal of standardizing definitions of RP to create uniform groups of patients with key shared features for clinical research and may also provide context to aid in diagnosis.
Race for RP driver, Neil “Neilio” Langberg, and his Scuderia Corsa teammates aggressively drove awareness of relapsing polychondritis (RP) with skill and determination in Round 2 of the Ferrari Challenge North America.
In 2020, Flewitt will represent the Race for RP for a full season in the British GT Championship Pro/Am and the Pure McLaren GT Series in a McLaren 570S GT4
Race For RP on Social Media
Fastest from practice 1 at @DISupdates :
DPi: No. 6 @Team_Penske
GTLM: No. 912 @PorscheNAracing
GTD: No. 63 @RaceWeatherTech
#IMSA / #WeatherTech240
Wow! A great offer especially for all of the #RaceforRP fans who want to follow the #IMSA @MichelinRaceUSA Pilot Challenge races live!
Thank you, @MichelinUSA and @IMSA!
Free! No strings attached TrackPass subscription courtesy of Michelin. Get a complimentary 1-year subscription offer to stream IMSA races via TrackPass on NBC Sports Gold with promo code MICHELINIMSA. Thank you @MichelinUSA!
More info: https://bit.ly/2NUlgGU
#IMSA
The epidemiology of relapsing polychondritis (RP) from @DrEmilySomers' presentation at the Symposium Exploring #AutoimmuneDiseases hosted by @NorthernMichU’s School of Nursing and the RP Foundation.
#RelapsingPolychondritis #RaceforRP #Autoimmune @AARDATweets @AHNtoday
IMSA racing returns with the #WeatherTech240 at Daytona this July 4th at Daytona International Speedway.
The Race for RP is thrilled to see racing resume and this weekend we'll be cheering for Scuderia Corsa and the WeatherTech Racing No. 63 Ferrari 488 GT3 Evo driven by Cooper MacNeil and Toni Vilander.
Good luck in practice today!
#IMSA #nbcracingweekend
