“RP The Ride of My Life”
This powerful documentary about Nancy and her family’s journey through many years of struggling with painful and debilitating symptoms with an unknown cause, eventually being diagnosed with an extremely rare autoimmune disease, Relapsing Polychondritis (“RP”), and ultimately finding the strength and courage to persevere with a purpose to raise awareness about RP, help others in diagnosis and support, and advance research efforts about this and other autoimmune diseases in pursuit of treatments and cures.
RP Patient Survey
Please participate in a relapsing polychondritis (RP) patient-reported symptoms survey, which is being conducted by the National Institute of Arthritis Musculoskeletal and Skin Diseases (NIAMS) of the National Institutes of Health (NIH).
Your participation as an RP patient is critically important as it will further research! Please share this survey link with other RP patients and encourage them to participate.
The Relapsing Polychondritis (RP) Foundation and Race for RP are pleased to support the NIAMS survey, given it will help develop classification criteria and hopefully facilitate timely diagnosis.
The NIAMS survey is for RP patients who are at least 18 years old. Your responses are voluntary and confidential. You will not be compensated for your participation.
LATEST NEWS
Collecting this data will advance the goal of standardizing definitions of RP to create uniform groups of patients with key shared features for clinical research and may also provide context to aid in diagnosis.
Race for RP driver, Neil “Neilio” Langberg, and his Scuderia Corsa teammates aggressively drove awareness of relapsing polychondritis (RP) with skill and determination in Round 2 of the Ferrari Challenge North America.
In 2020, Flewitt will represent the Race for RP for a full season in the British GT Championship Pro/Am and the Pure McLaren GT Series in a McLaren 570S GT4
Jeff Westphal, Race for Relapsing Polychondritis driver, is pulling double duty – again. He’ll be racing in both the IMSA Michelin Pilot Challenge 2020 season opener, the BMW Endurance Challenge at Daytona, and as part of the four man Scuderia Corsa team in the Rolex 24 Hours at Daytona.
The Race for Relapsing Polychondritis (RP) is thrilled that Neil Langberg was awarded 2019 Driver of the Year in the Pure McLaren GT Series, an FIA sanctioned international one-make racing championship based around the astounding McLaren 570S GT4.
Race For RP on Social Media
Join us with @AARDATweets for a one-hour webinar featuring panelists with a profound understanding of COVID-19 and its effects on the #autoimmune community.
Friday, April 3, 2020 | 2-3pm ET.
Register at: https://zoom.us/webinar/register/WN_F1gJdkVMTkCXht6WiscXUQ
#AutoimmuneDisease #RelapsingPolychondritis
Attention RP patients!
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The @NIH needs your help to better understand #RelapsingPolychondritis (RP).
Please participate in the patient-reported symptoms survey being conducted by @NIH_NIAMS.
Survey link: http://www.surveymonkey.com/r/NIHrpsurvey
#RaceforRP #NIH #Research
A great first @instagram Q&A on @gtworldcham with @RyanMyrehn and @KyleMarcelli. Hope to see more of these. Great concept! #GTWorldCham
¡Atención pacientes con Policondritis Recividante! Si tienes 18 años o más, por favor completa esta encuesta importante realizada por Los Institutos Nacionales de Salud.
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Gracias.
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Attention patients with relapsing polychondritis! If you are 18 years or older, please complete this important survey being conducted by the National Institutes of Health.
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Thank you.
Policondritis Recidivante Apoyo e Investigacíon POLICONDRITIS Policondrite Amigos
Join American Autoimmune Related Diseases Association (AARDA) for a one-hour webinar featuring panelists with a profound understanding of COVID-19 and its effects on the autoimmune community.
Friday, April 3, 2020 | 2:00- 3:00 p.m. (Eastern)
Upon registration, participants will be invited to submit questions for our panelists.
Click here to Register: zoom.us/webinar/register/WN_F1gJdkVMTkCXht6WiscXUQ
Attention RP patients!
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The National Institutes of Health (NIH) needs your help to better understand relapsing polychondritis (RP).
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If you have been diagnosed with relapsing polychondritis and are 18 years or older, please participate in the patient-reported symptoms survey which is being spearheaded by Dr. Marce Ferrarda of National Institute of Arthritis and Musculoskeletal and Skin Diseases.
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Survey link: www.surveymonkey.com/r/NIHrpsurvey
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THANK YOU to all who have completed the survey! Your support of RP research is greatly appreciated.
