“RP The Ride of My Life”
This powerful documentary about Nancy and her family’s journey through many years of struggling with painful and debilitating symptoms with an unknown cause, eventually being diagnosed with an extremely rare autoimmune disease, Relapsing Polychondritis (“RP”), and ultimately finding the strength and courage to persevere with a purpose to raise awareness about RP, help others in diagnosis and support, and advance research efforts about this and other autoimmune diseases in pursuit of treatments and cures.
RP Patient Survey
Please participate in a relapsing polychondritis (RP) patient-reported symptoms survey, which is being conducted by the National Institute of Arthritis Musculoskeletal and Skin Diseases (NIAMS) of the National Institutes of Health (NIH).
Your participation as an RP patient is critically important as it will further research! Please share this survey link with other RP patients and encourage them to participate.
The Relapsing Polychondritis (RP) Foundation and Race for RP are pleased to support the NIAMS survey, given it will help develop classification criteria and hopefully facilitate timely diagnosis.
The NIAMS survey is for RP patients who are at least 18 years old. Your responses are voluntary and confidential. You will not be compensated for your participation.
LATEST NEWS
A live webinar on novelties about the diagnosis and therapeutic management of relapsing polychondritis in 2020 by Professor Laurent Arnaud, held on 23rd April 2020 for ERN ReCONNET.
Collecting this data will advance the goal of standardizing definitions of RP to create uniform groups of patients with key shared features for clinical research and may also provide context to aid in diagnosis.
Race for RP driver, Neil “Neilio” Langberg, and his Scuderia Corsa teammates aggressively drove awareness of relapsing polychondritis (RP) with skill and determination in Round 2 of the Ferrari Challenge North America.
In 2020, Flewitt will represent the Race for RP for a full season in the British GT Championship Pro/Am and the Pure McLaren GT Series in a McLaren 570S GT4
Jeff Westphal, Race for Relapsing Polychondritis driver, is pulling double duty – again. He’ll be racing in both the IMSA Michelin Pilot Challenge 2020 season opener, the BMW Endurance Challenge at Daytona, and as part of the four man Scuderia Corsa team in the Rolex 24 Hours at Daytona.
Race For RP on Social Media
As a professor at Hacettepe University, a leading university in Turkey, Dr. Ömer Karadağ is well-versed in RP and is a crucial part of the International Relapsing Polychondritis Research Network (IRPRN).
Thank you, Dr. Karadağ!
@Hacettepe1967 @RaceforRP
RP Research Scientist Spotlight: Ömer Karadağ, MD - Relapsing Polychondritis
As the Director of the Hacettepe University Vasculitis Center, Dr. Karadağ sees patients with relapsing polychondritis (RP) and other types of vascul...
polychondritis.org
Dr. Ora Singer is a physician scientist at the University of Michigan in Ann Arbor. As a rheumatology specialist with a practice that includes #RelapsingPolychondritis patients, she is an excellent advocate and we are grateful for her support.
RP Research Scientist Spotlight: Ora B. Gewurz-Singer, MD - Relapsing Polychondritis
Dr. Singer is a physician scientist at the University of Michigan in Ann Arbor. As a rheumatology specialist with a practice that includes RP patien...
polychondritis.org
Working with the National Institutes of Health as a pediatric #rheumatologist, Dr. Keith Sikora gets to see every pediatric patient with RP who walks through the @NIH clinic doors.
He’s truly on the front lines when it comes to #RelapsingPolychondritis.
RP Research Scientist Spotlight: Keith A. Sikora, MD - Relapsing Polychondritis
Working with the National Institute of Health as a pediatric rheumatologist, Dr. Keith Sikora gets to see every pediatric patient with RP who walks th...
polychondritis.org
Expert doctors, relapsing polychondritis (RP) patients, and advocates explain the need for new treatments and the importance of accelerating research on RP, a debilitating systemic inflammatory disease that is characterized by recurrent inflammation of cartilage and other tissues throughout the body.
Please share this video on social media.
#RaceforRP #RelapsingPolychondritis Relapsing Polychondritis Foundation
RP Research Scientist Spotlight: Ömer Karadağ, MD - Relapsing Polychondritis
RP Research Scientist Spotlight: Ömer Karadağ, MD - Relapsing Polychondritis
polychondritis.org
As the Director of the Hacettepe University Vasculitis Center, Dr. Karadağ sees patients with relapsing polychondritis (RP) and other types of vasculitis on a regular basis. His center in Ankara, Tur...RP Research Scientist Spotlight: Ora B. Gewurz-Singer, MD - Relapsing Polychondritis
RP Research Scientist Spotlight: Ora B. Gewurz-Singer, MD - Relapsing Polychondritis
polychondritis.org
Dr. Singer is a physician scientist at the University of Michigan in Ann Arbor. As a rheumatology specialist with a practice that includes RP patients, she is an excellent advocate and we are grateful...Dr. Singer became my Rheumatologist the end of February. It is very comforting that she has experience with RP and the Treatments. RP is so rare most doctors look like a deer caught in the headlights. I am so fortunate to have Dr. Singer in my corner.
Thank you, Dr. Ora Singer!