“RP The Ride of My Life”
This powerful documentary about Nancy and her family’s journey through many years of struggling with painful and debilitating symptoms with an unknown cause, eventually being diagnosed with an extremely rare autoimmune disease, Relapsing Polychondritis (“RP”), and ultimately finding the strength and courage to persevere with a purpose to raise awareness about RP, help others in diagnosis and support, and advance research efforts about this and other autoimmune diseases in pursuit of treatments and cures.
RP PATIENT SURVEY: AUTOIMMUNE AND COVID-19
When it comes to how the rapidly spreading coronavirus (COVID-19) is affecting people with vasculitis, medical experts agree there are more questions than answers – at least right now.
To address that concern, the Relapsing Polychondritis Foundation, the Vasculitis Foundation (VF), and the Vasculitis Patient Powered Research Network (VPPRN) have teamed up with partners in the Autoimmune Research Collaborative (ARC) to launch a new COVID-19 patient study.
We want to know your concerns. Please participate in the patient research survey: Autoimmune and COVID-19. Your participation will help researchers, clinicians and other patients better understand how people with relapsing polychondritis and other forms of vasculitis are dealing with COVID-19 / the novel coronavirus.
To get started, please go to: www.vasculitisfoundation.org/rp_vasccovid-19/
LATEST NEWS
The Relapsing Polychondritis (RP) Foundation has announced a generous gift to establish the Penn Relapsing Polychondritis Fund, which will support a unique partnership between the University of Pennsylvania RP Program and the National Institutes of Health (NIH) sponsored Vasculitis Clinical Research Consortium (VCRC).
A live webinar on novelties about the diagnosis and therapeutic management of relapsing polychondritis in 2020 by Professor Laurent Arnaud, held on 23rd April 2020 for ERN ReCONNET.
Collecting this data will advance the goal of standardizing definitions of RP to create uniform groups of patients with key shared features for clinical research and may also provide context to aid in diagnosis.
Race for RP driver, Neil “Neilio” Langberg, and his Scuderia Corsa teammates aggressively drove awareness of relapsing polychondritis (RP) with skill and determination in Round 2 of the Ferrari Challenge North America.
In 2020, Flewitt will represent the Race for RP for a full season in the British GT Championship Pro/Am and the Pure McLaren GT Series in a McLaren 570S GT4
Race For RP on Social Media
Looking good, @Balfemotorsport, @MiaFlewitt and @EaunHankey!
#RaceforRP #RelapsingPolychondritis #BritishGT @BritishGT
I spy with my little eye, something beginning with... McLaren! We're out at @DoningtonParkUK today with @MiaFlewitt and @EuanHankey in their 570S GT4!
📸: @JakobEbrey
Diagnosis of #RelapsingPolychondritis (RP) is often delayed, especially when there is an absence of ear/nose involvement. @DrEmilySomers explains that 64% of patients reported symptoms more than 5 years prior to being diagnosed with RP.
@AHNtoday @AARDATweets @NorthernMichU
It was a top 5 finish for Scuderia Corsa in the #WeatherTech240 at Daytona International Speedway in this highly anticipated return of the 2020 IMSA racing season. We had a blast cheering for Cooper MacNeil and Toni Vilander in the No. 63 Ferrari 488 GT3 Evo 2020.
Next up is Sebring International Raceway for the return of the Michelin Pilot Challenge fielding three Race for RP drivers, followed by the Cadillac Grand Prix of Sebring July 16-18.
#RaceforRP #IMSA
www.scuderiacorsa.com/blog/scuderia-corsa-shows-consistency-and-speed-at-daytona
Scuderia Corsa Shows Consistency and Speed at Daytona — Scuderia Corsa
www.scuderiacorsa.com
Scuderia Corsa qualified and finished fifth in the WeatherTech 240 at Daytona this holiday weekend, its first race back since the IMSA 24 At Daytona in late January.Happy Fourth of July everyone! ❤️🤍💙
Today’s WeatherTech 240 schedule packs your day with plenty of sports car racing. To top it off a five minute firework show will conclude the celebration 🍾 🇺🇸🏁
