“RP The Ride of My Life”
This powerful documentary about Nancy and her family’s journey through many years of struggling with painful and debilitating symptoms with an unknown cause, eventually being diagnosed with an extremely rare autoimmune disease, Relapsing Polychondritis (“RP”), and ultimately finding the strength and courage to persevere with a purpose to raise awareness about RP, help others in diagnosis and support, and advance research efforts about this and other autoimmune diseases in pursuit of treatments and cures.
RP Patient Survey
Please participate in a relapsing polychondritis (RP) patient-reported symptoms survey, which is being conducted by the National Institute of Arthritis Musculoskeletal and Skin Diseases (NIAMS) of the National Institutes of Health (NIH).
Your participation as an RP patient is critically important as it will further research! Please share this survey link with other RP patients and encourage them to participate.
The Relapsing Polychondritis (RP) Foundation and Race for RP are pleased to support the NIAMS survey, given it will help develop classification criteria and hopefully facilitate timely diagnosis.
The NIAMS survey is for RP patients who are at least 18 years old. Your responses are voluntary and confidential. You will not be compensated for your participation.
The Relapsing Polychondritis (RP) Foundation has announced a generous gift to establish the Penn Relapsing Polychondritis Fund, which will support a unique partnership between the University of Pennsylvania RP Program and the National Institutes of Health (NIH) sponsored Vasculitis Clinical Research Consortium (VCRC).
A live webinar on novelties about the diagnosis and therapeutic management of relapsing polychondritis in 2020 by Professor Laurent Arnaud, held on 23rd April 2020 for ERN ReCONNET.
Collecting this data will advance the goal of standardizing definitions of RP to create uniform groups of patients with key shared features for clinical research and may also provide context to aid in diagnosis.
Race for RP driver, Neil “Neilio” Langberg, and his Scuderia Corsa teammates aggressively drove awareness of relapsing polychondritis (RP) with skill and determination in Round 2 of the Ferrari Challenge North America.
In 2020, Flewitt will represent the Race for RP for a full season in the British GT Championship Pro/Am and the Pure McLaren GT Series in a McLaren 570S GT4