“RP The Ride of My Life”

This powerful documentary about Nancy and her family’s journey through many years of struggling with painful and debilitating symptoms with an unknown cause, eventually being diagnosed with an extremely rare autoimmune disease, Relapsing Polychondritis (“RP”), and ultimately finding the strength and courage to persevere with a purpose to raise awareness about RP, help others in diagnosis and support, and advance research efforts about this and other autoimmune diseases in pursuit of treatments and cures.

RP Patient Survey

Please participate in a relapsing polychondritis (RP) patient-reported symptoms survey, which is being conducted by the National Institute of Arthritis Musculoskeletal and Skin Diseases (NIAMS) of the National Institutes of Health (NIH).

Your participation as an RP patient is critically important as it will further research! Please share this survey link with other RP patients and encourage them to participate.

The Relapsing Polychondritis (RP) Foundation and Race for RP are pleased to support the NIAMS survey, given it will help develop classification criteria and hopefully facilitate timely diagnosis.

The NIAMS survey is for RP patients who are at least 18 years old. Your responses are voluntary and confidential. You will not be compensated for your participation.

LATEST NEWS

Race For RP on Social Media

RP patients: We need your help to better understand relapsing polychondritis. If you have been diagnosed with #RelapsingPolychondritis and are 18 years or older, please complete this survey being conducted by @NIH_NIAMS.

Survey link: http://www.surveymonkey.com/r/NIHrpsurvey

@NIH #NIH #Research

Take a fast lap around @RoadAtlanta in the @Scuderia_Corsa No. 153 Ferrari 488 Challenge Evo with #RaceforRP driver, Neilio.

Thank you for driving awareness of #RelapsingPolychondritis (RP), a debilitating #autoimmunedisease that attacks cartilage throughout a patient’s body.

#ThrowbackThusday. Protecting the stables! The No. 153 Race for RP Ferrari 488 Challenge under guard in the @Scuderia_Corsa paddock during the #FerrariChallenge and F1 Grand Prix in Montreal 2018.

#RaceforRP #RelapsingPolychondritis #Ferrari488

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RP patients: We need your help to better understand relapsing polychondritis.
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If you have been diagnosed with relapsing polychondritis and are 18 years or older, please complete the survey that is being spearheaded by Dr. Marce Ferrada of the National Institute of Arthritis and Musculoskeletal and Skin Diseases / National Institutes of Health (NIH).
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Survey link: www.surveymonkey.com/r/NIHrpsurvey
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THANK YOU to all who have completed the survey! Your support of RP research is greatly appreciated.
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This is an informative and incredibly helpful resource for relapsing polychondritis (RP) patients as well as physicians and health professionals.This the latest RP poster which includes a listing of symptoms and possible complications, information for physicians and health professionals, links to support groups from around the world, and the updated RP Foundation’s social media handles.

The poster can also be downloaded directly here: bit.ly/RP_Poster
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This is an informative and incredibly helpful resource for relapsing polychondritis (RP) patients as well as physicians and health professionals.

We're looking forward to hearing from Race for RP driver, Jeff Westphal today at 5pm EST!

Tune into Scuderia Corsa's Instagram stories to watch live.

#jeffchat #RaceforRPHe’s been waiting all week to talk to you! Tune in to our stories at 5pm ET/ 2 pm PT to hear Jeff Westphal answer all your questions. #JeffChat #socialdistancing
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Were looking forward to hearing from Race for RP driver, Jeff Westphal today at 5pm EST! 

Tune into Scuderia Corsas Instagram stories to watch live.  

#JeffChat #RaceforRP
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