“RP The Ride of My Life”
This powerful documentary about Nancy and her family’s journey through many years of struggling with painful and debilitating symptoms with an unknown cause, eventually being diagnosed with an extremely rare autoimmune disease, Relapsing Polychondritis (“RP”), and ultimately finding the strength and courage to persevere with a purpose to raise awareness about RP, help others in diagnosis and support, and advance research efforts about this and other autoimmune diseases in pursuit of treatments and cures.
RP Patient Survey
Please participate in a relapsing polychondritis (RP) patient-reported symptoms survey, which is being conducted by the National Institute of Arthritis Musculoskeletal and Skin Diseases (NIAMS) of the National Institutes of Health (NIH).
Your participation as an RP patient is critically important as it will further research! Please share this survey link with other RP patients and encourage them to participate.
The Relapsing Polychondritis (RP) Foundation and Race for RP are pleased to support the NIAMS survey, given it will help develop classification criteria and hopefully facilitate timely diagnosis.
The NIAMS survey is for RP patients who are at least 18 years old. Your responses are voluntary and confidential. You will not be compensated for your participation.
LATEST NEWS
Collecting this data will advance the goal of standardizing definitions of RP to create uniform groups of patients with key shared features for clinical research and may also provide context to aid in diagnosis.
Race for RP driver, Neil “Neilio” Langberg, and his Scuderia Corsa teammates aggressively drove awareness of relapsing polychondritis (RP) with skill and determination in Round 2 of the Ferrari Challenge North America.
In 2020, Flewitt will represent the Race for RP for a full season in the British GT Championship Pro/Am and the Pure McLaren GT Series in a McLaren 570S GT4
Jeff Westphal, Race for Relapsing Polychondritis driver, is pulling double duty – again. He’ll be racing in both the IMSA Michelin Pilot Challenge 2020 season opener, the BMW Endurance Challenge at Daytona, and as part of the four man Scuderia Corsa team in the Rolex 24 Hours at Daytona.
The Race for Relapsing Polychondritis (RP) is thrilled that Neil Langberg was awarded 2019 Driver of the Year in the Pure McLaren GT Series, an FIA sanctioned international one-make racing championship based around the astounding McLaren 570S GT4.
Race For RP on Social Media
Unsupported get request. Object with ID '17841407095621490' does not exist, cannot be loaded due to missing permissions, or does not support this operation. Please read the Graph API documentation at https://developers.facebook.com/docs/graph-api
RP patients: We need your help to better understand relapsing polychondritis. If you have been diagnosed with #RelapsingPolychondritis and are 18 years or older, please complete this survey being conducted by @NIH_NIAMS.
Survey link: http://www.surveymonkey.com/r/NIHrpsurvey
@NIH #NIH #Research
Take a fast lap around @RoadAtlanta in the @Scuderia_Corsa No. 153 Ferrari 488 Challenge Evo with #RaceforRP driver, Neilio.
Thank you for driving awareness of #RelapsingPolychondritis (RP), a debilitating #autoimmunedisease that attacks cartilage throughout a patient’s body.
#ThrowbackThusday. Protecting the stables! The No. 153 Race for RP Ferrari 488 Challenge under guard in the @Scuderia_Corsa paddock during the #FerrariChallenge and F1 Grand Prix in Montreal 2018.
#RaceforRP #RelapsingPolychondritis #Ferrari488
RP patients: We need your help to better understand relapsing polychondritis.
⠀⠀⠀⠀⠀⠀⠀⠀
If you have been diagnosed with relapsing polychondritis and are 18 years or older, please complete the survey that is being spearheaded by Dr. Marce Ferrada of the National Institute of Arthritis and Musculoskeletal and Skin Diseases / National Institutes of Health (NIH).
⠀⠀⠀⠀⠀⠀⠀⠀
Survey link: www.surveymonkey.com/r/NIHrpsurvey
⠀⠀⠀⠀⠀⠀⠀⠀
THANK YOU to all who have completed the survey! Your support of RP research is greatly appreciated.
This is an informative and incredibly helpful resource for relapsing polychondritis (RP) patients as well as physicians and health professionals.This the latest RP poster which includes a listing of symptoms and possible complications, information for physicians and health professionals, links to support groups from around the world, and the updated RP Foundation’s social media handles.
The poster can also be downloaded directly here: bit.ly/RP_Poster
We're looking forward to hearing from Race for RP driver, Jeff Westphal today at 5pm EST!
Tune into Scuderia Corsa's Instagram stories to watch live.
#jeffchat #RaceforRPHe’s been waiting all week to talk to you! Tune in to our stories at 5pm ET/ 2 pm PT to hear Jeff Westphal answer all your questions. #JeffChat #socialdistancing
