“RP The Ride of My Life”
This powerful documentary about Nancy and her family’s journey through many years of struggling with painful and debilitating symptoms with an unknown cause, eventually being diagnosed with an extremely rare autoimmune disease, Relapsing Polychondritis (“RP”), and ultimately finding the strength and courage to persevere with a purpose to raise awareness about RP, help others in diagnosis and support, and advance research efforts about this and other autoimmune diseases in pursuit of treatments and cures.
RP Patient Survey
Please participate in a relapsing polychondritis (RP) patient-reported symptoms survey, which is being conducted by the National Institute of Arthritis Musculoskeletal and Skin Diseases (NIAMS) of the National Institutes of Health (NIH).
Your participation as an RP patient is critically important as it will further research! Please share this survey link with other RP patients and encourage them to participate.
The Relapsing Polychondritis (RP) Foundation and Race for RP are pleased to support the NIAMS survey, given it will help develop classification criteria and hopefully facilitate timely diagnosis.
The NIAMS survey is for RP patients who are at least 18 years old. Your responses are voluntary and confidential. You will not be compensated for your participation.
LATEST NEWS
The Relapsing Polychondritis (RP) Foundation has announced a generous gift to establish the Penn Relapsing Polychondritis Fund, which will support a unique partnership between the University of Pennsylvania RP Program and the National Institutes of Health (NIH) sponsored Vasculitis Clinical Research Consortium (VCRC).
A live webinar on novelties about the diagnosis and therapeutic management of relapsing polychondritis in 2020 by Professor Laurent Arnaud, held on 23rd April 2020 for ERN ReCONNET.
Collecting this data will advance the goal of standardizing definitions of RP to create uniform groups of patients with key shared features for clinical research and may also provide context to aid in diagnosis.
Race for RP driver, Neil “Neilio” Langberg, and his Scuderia Corsa teammates aggressively drove awareness of relapsing polychondritis (RP) with skill and determination in Round 2 of the Ferrari Challenge North America.
In 2020, Flewitt will represent the Race for RP for a full season in the British GT Championship Pro/Am and the Pure McLaren GT Series in a McLaren 570S GT4
Race For RP on Social Media
Last year, Race for RP made global headlines driving #RelapsingPolychondritis (RP) awareness at the 103rd running of the #Indy500.
Thank you, @Scuderia_Corsa and @ECRIndy!
#RaceforRP #IndyCar #AutoimmuneDisease @IndyCar @IMS @Edjonesracing
Race for Relapsing Polychondritis at the 2019 Indianapolis 500
On May 26, 2019 relapsing polychondritis (RP) and autoimmune disease awareness rose to a new level during the 103rd running of the Indianapolis 500. I...
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Excellent to see @MiaFlewitt and the @Balfemotorsport No. 21 McLaren 570S GT4 back on the track at @Oulton_Park testing ahead of the @BritishGT.
@customerracing @DoculifeGlobal @TopazDetailing @RebellionTime @SkyUK
#RaceforRP #RelapsingPolychondritis #AutoimmuneDisease
We were finally back testing this week! Great to be back as a team @balfemotorsport (practicing social distancing of course) 🏁 @british_gt @mclaren_customerracing @mydoculife @raceforrp @topazdetailing @rebelliontimepieces #skyvip #inception @euanhankey
Exciting news! @RP_Organization has announced a generous gift to establish the Penn #RelapsingPolychondritis Fund, which will support a unique partnership between the University of Pennsylvania RP Program and @NIH @rarediseasesnet's #Vasculitis Clinical Research Consortium #VCRC! https://twitter.com/RP_Organization/status/1265325411313029120
The Relapsing Polychondritis Foundation is excited to announce an important research initiative and new partnership with the University of Pennsylvania and the Vasculitis Clinical Research Consortium.
#RaceforRP #RelapsingPolychondritis #UPenn
https://bit.ly/Penn_RP_Program
Last year, Race for RP made global headlines driving relapsing polychondritis (RP) awareness at the 103rd running of the Indianapolis 500. Thank you, Scuderia Corsa and Ed Carpenter Racing!
#RaceforRP #RelapsingPolychondritis #AutoimmuneDisease
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On May 26, 2019 relapsing polychondritis (RP) and autoimmune disease awareness rose to a new level during the 103rd running of the Indianapolis 500. It was an honor to have the Race for Relapsing Polychondritis brand carried on the No. 63 Chevrolet during this single largest one-day sporting event in the world, with over 400,000 people in attendance and 5 million viewers around the world.
Thank you to the teams, Ed Carpenter Racing and Scuderia Corsa along with drivers Ed Carpenter, Spencer Pigot and Ed Jones Racing, for your support of Race for RP - "Relapsing Polychondritis". It was an extraordinary and unforgettable experience, from the emotional opening ceremony and driver introductions, through the entire live broadcast on NBC. The Race for RP is so grateful to have participated in the “Greatest Spectacle in Racing” which was significant to our mission of driving awareness about relapsing polychondrits and accelerating autoimmune disease research.
There are over 100 autoimmune diseases which affect upwards of 50 million Americans. Some are rare like relapsing polychondritis (RP) or ankylosing spondylitis (AS), and some are more common such as celiac disease, multiple sclerosis or psoriasis. But we are in this together and it was an important milestone to have our story told on this global platform.
Please share this video as we continue to raise awareness and advance research efforts for autoimmune diseases which affect so many of us!
#RaceforRP #MustBeMay #ThisIsMay #IndyCar #Indy500 #RelapsingPolychondritis #Polychondritis #AutoimmuneDisease #AutoimmuneAwareness #Autoimmune #AutoimmuneWarrior #Autoimmunity #AutoimmuneDiseases Indianapolis Motor Speedway NTT INDYCAR SERIES American Autoimmune Related Diseases Association (AARDA) Autoimmune Disease List Autoimmune Wellness Allegheny Health Network Crohn's & Colitis Foundation Graves' Disease and Thyroid Foundation Surviving Graves Disease Natural Solutions For Graves' Disease & Hashimoto's Thyroiditis Lupus Foundation of America National Multiple Sclerosis Society National Psoriasis Foundation Relapsing Polychondritis Foundation RheumatoidArthritis.net Rheumatoid Arthritis Warrior National Rheumatoid Arthritis Society (NRAS) Sjögren's Foundation Type 1 Diabetes Support and Information Vasculitis Foundation Vasculitis Patient-Powered Research Network Rare Diseases Clinical Research Network (RDCRN) National Institute of Arthritis and Musculoskeletal and Skin Diseases National Ankylosing Spondylitis Society Beyond Celiac Celiac Disease Foundation Guillian-Barre' Syndrome/CIPD Awareness Scleroderma Foundation Psoriatic-Arthritis.com Benaroya Research Institute at Virginia Mason
It still gives me chills to watch this again!! I appreciate all who participated in this amazing event. As our Foundation Board members said, the exposure and Awareness this produced was, and still is, INVALUABLE. Thank you so very much👍❤🏆
Thank you for all you do for us 🏎️💜
An outstanding update from Race for RP driver, Mia Flewitt, and the No. 21 Balfe Motorsport McLaren 570S GT4 at Oulton Park.
British GT Championship My Doculife Topaz Detailing Rebellion Timepieces Sky
#RaceforRP #RelapsingPolychondritis
Outstanding to see the #OGR back on the track behind the wheel of the Race for RP No. 153 Ferrari 488 Challenge Evo at Buttonwillow Raceway Park.
Wonderful to see our friends and teammates at Scuderia Corsa, including Racer mom and Mark Fuller. And a big shout out to Neilio's driver coach, Jon Morley!
Thank you for showing your support of Race for RP, and helping to drive awareness and accelerate research of relapsing polychondritis.
#RaceforRP #RelapsingPolychondritis
So good to see our very special friends Nancy and Neil today!