“RP The Ride of My Life”
This powerful documentary about Nancy and her family’s journey through many years of struggling with painful and debilitating symptoms with an unknown cause, eventually being diagnosed with an extremely rare autoimmune disease, Relapsing Polychondritis (“RP”), and ultimately finding the strength and courage to persevere with a purpose to raise awareness about RP, help others in diagnosis and support, and advance research efforts about this and other autoimmune diseases in pursuit of treatments and cures.
RP PATIENT SURVEY: AUTOIMMUNE AND COVID-19
When it comes to how the rapidly spreading coronavirus (COVID-19) is affecting people with vasculitis, medical experts agree there are more questions than answers – at least right now.
To address that concern, the Relapsing Polychondritis Foundation, the Vasculitis Foundation (VF), and the Vasculitis Patient Powered Research Network (VPPRN) have teamed up with partners in the Autoimmune Research Collaborative (ARC) to launch a new COVID-19 patient study.
We want to know your concerns. Please participate in the patient research survey: Autoimmune and COVID-19. Your participation will help researchers, clinicians and other patients better understand how people with relapsing polychondritis and other forms of vasculitis are dealing with COVID-19 / the novel coronavirus.
To get started, please go to: www.vasculitisfoundation.org/rp_vasccovid-19/
LATEST NEWS
Race for RP was represented by outstanding drivers and teams in the IMSA Michelin Pilot Challenge at Road America, driving awareness of relapsing polychondritis (RP).
The Relapsing Polychondritis (RP) Foundation has announced a generous gift to establish the Penn Relapsing Polychondritis Fund, which will support a unique partnership between the University of Pennsylvania RP Program and the National Institutes of Health (NIH) sponsored Vasculitis Clinical Research Consortium (VCRC).
A live webinar on novelties about the diagnosis and therapeutic management of relapsing polychondritis in 2020 by Professor Laurent Arnaud, held on 23rd April 2020 for ERN ReCONNET.
Collecting this data will advance the goal of standardizing definitions of RP to create uniform groups of patients with key shared features for clinical research and may also provide context to aid in diagnosis.
Race for RP driver, Neil “Neilio” Langberg, and his Scuderia Corsa teammates aggressively drove awareness of relapsing polychondritis (RP) with skill and determination in Round 2 of the Ferrari Challenge North America.
Race For RP on Social Media
Check out @SkySportsF1's re-cap of @MiaFlewitt and @EuanHankey’s GT4 victory at @Oulton_Park.
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The @Balfemotorsport duo will be hoping to repeat the feat this weekend at @DoningtonParkUK.
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#BritishGT #GT4 #McLaren570S #RaceforRP
It's pretty fantastic to say so soon after our success at Oulton Park with @MiaFlewitt and @EuanHankey, that is is race week once more!
Perhaps we'll see some of you (at a safe distance!) at Donington Park?
Check out Sky Sports F1's re-cap of Mia Flewitt and Euan Hankey’s GT4 victory at @Oulton Park.
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The Balfe Motorsport duo will be hoping to repeat the feat this weekend at @Donington Park.
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#BritishGT #GT4 #McLaren570S
LOVE the world stage that Race for RP has!
Thank you for all you do for us 🏎️🏎️🏎️🏎️🌟🌟🌟🌟
Bravo, @Jon Miller!
Fastest Lap of the GT4 America SprintX race yesterday at Sonoma Raceway.
Congratulations, Mia Flewitt! We're looking forward to an exciting season in the British GT Championship.
Flewitt Racing Sky Sports My Doculife Topaz Detailing Rebellion Timepieces VirtusLab #Inception
#RaceforRP #RelapsingPolychondritis #BritishGT
