“RP The Ride of My Life”

This powerful documentary about Nancy and her family’s journey through many years of struggling with painful and debilitating symptoms with an unknown cause, eventually being diagnosed with an extremely rare autoimmune disease, Relapsing Polychondritis (“RP”), and ultimately finding the strength and courage to persevere with a purpose to raise awareness about RP, help others in diagnosis and support, and advance research efforts about this and other autoimmune diseases in pursuit of treatments and cures.

LATEST NEWS

Relapsing Polychondritis Sufferers Get a Boost As Non-Profit Organization Continues Major Drive to Accelerate Research and Awareness -September 10, 2018

The modern age has introduced some miraculous leaps in medicine for many conditions – but for others, they remain virtually unknown except to their sufferers, who may not even receive a diagnosis.

For the board of directors at RPASF, a 501(c)(3) non-profit, this is something that must be remedied – and the foundation is now driving its resources into increasing awareness about relapsing polychondritis and finding a cure, including interdisciplinary collaborations and events with  major players in the autoimmune disease community.

The most recent event, Grapes on the Green, took place on August 24 and raised an impressive $500,000 for the Benaroya Research Institute at Virginia Mason (BRI), a world-class autoimmune disease research center in Seattle, WA.  RPASF, together with Race for RP and Ferrari of Seattle, displayed a Ferrari 488 Spider (pictured) and donated a hot lap experience that was successfully auctioned to raise $5,000.

“Autoimmune diseases – such as relapsing polychondritis – happen when your immune system mistakenly attacks the body, rather than the foreign invaders it should. We don’t yet know what causes this misfire – which is what makes it so tough to diagnose and treat,” explained Dr. Jane H. Buckner, President of BRI.

“The path to a cure is not going to be easy – but events like this can help to further research and progress against relapsing polychondritis and other autoimmune diseases. Each donation, each event, and each laboratory breakthrough is progress not just for those suffering from relapsing polychondritis, but for sufferers of all autoimmune disorders.”

Jeff Westphal Joins Race for RP as Official Driver and Advocate Supporting Relapsing Polychondritis Awareness – August  5, 2018

Today, Race for RP is excited to announce that Jeff Westphal has graciously agreed to be an “official” Race for RP driver and continue his fantastic advocacy for relapsing polychondritis awareness, patient care and research.

Jeff is a pioneer of the Race for RP  program.  His energy, expertise and ideas helped launch our motorsports program. And in 2017, Jeff played a key role in organizing the Twilight Ride for RP at Laguna Seca,  https://www.youtube.com/watch?v=VT3PmCleYmg&t=1s

Jeff Westphal’s racing background is excellent.  A standout at a young age, Jeff showed his natural gift for racing on a kart track, but shortly thereafter found himself behind the wheel as an impressive up-and-comer of Infineon Raceway, and ultimately exploding onto some of racing’s top series and circuits.  Jeff has competed in the F2000 Championship, setting the win record for the series with PR1 Motorsports, won Grand Am Rolex Races, Redline & Global Time Attack Championships Unlimited class for GST Motorsport (9 track records), as well as wins in IMSA WeatherTech Championship and abroad in Germany’s GT3 championship VLN.  Jeff was also the first (and only) American driver to qualify on the pole for the 24HRs of Nurburgring, and most recently won the inaugural California 8Hrs.

Please see Jeff’s biography in our [Meet Our Drivers] section.

Please join us in welcoming Jeff to the Race for RP team of drivers. We thank him for his outstanding support.

 

For information about Jeff Westphal visit, www.jeffwestphalracing.com/

$50,000 Donation to be Used in the Area Of Relapsing Polychondritis, Including Patient-Related Travel to The National Institutes Of Health (NIH)  – August  3, 2018

The Relapsing Polychondritis Awareness and Support Foundation Inc. (RPASF) has announced that a $50,000 donation was made by current RPASF directors and officers to the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) to support intramural research in the area of relapsing polychondritis (“RP”), including patient-related travel to the National Institutes of Health (NIH).

Marcelli Uses Every Ounce of Fuel to Score Home Track Victory at Canadian Tire Motorsport Park With Stacy, Kohr Motorsports Ford – July 8, 2018

It was a Canadian driver in the IMSA Continental Tire SportsCar Challenge that crossed the finish line first in Saturday’s Canadian Tire Motorsport Park 120.

Kyle Marcelli, who hails from Barrie, Ontario, piloted the No. 60 KohR Motorsports / Roush Performance Ford Mustang GT4 to its third win of its season in the Grand Sport (GS) class with co-driver Nate Stacy. Stacy – in just his seventh series start – qualified the car in fifth place and the team overcame a hitch in their strategy during a mid-race caution to hold on for the win.

“My stint was quite stressful,” said Marcelli. “It was a miscommunication on the radio. When we got the full-course caution I was behind the safety car in Turn 8 and Dean Martin, our crew chief, asked me my opinion on if we should take fuel only. I was giving my answer through Turn 9 and as I released the radio button, he was yelling ‘Pit, pit, pit’ and I already missed the pit entry.

“I was kicking myself in the butt after that, and it just became a fuel conservation race for us. I just went to the fuel used page on the dash and called in the number every lap. We were basically using the gearbox to slow the car down. It paid off, we ended up saving about two and a half laps of fuel and I was able to win.”

The No. 60 Ford wound up running out of fuel on its way to the podium after the race.

After entering the weekend third place in the GS championship standings, the victory jumps Marcelli and Stacy into the points lead as the 2018 Continental Tire Challenge season is halfway complete.

AARDA Ambassador Kyle Marcelli Looking to Continue His Impressive Winning Streak at the Raceway at Belle Isle Park as Part of the Detroit Grand Prix  – June 1, 2018

Near AARDA headquarters, Kyle Marcelli will be co-driving the 3GT Racing No. 14 Lexus RC F GT3 for the fourth race of the 2018 IMSA WeatherTech Sports Car Championship series at the Raceway at Belle Isle Park on June 2nd.

Marcelli, fresh off his two impressive victories in the IMSA Continental Tire SportsCar Challenge (May 5th) and WeatherTech SportsCar Championship (May 6th) at Mid-Ohio Sports Car Course, was given the 2018 Autoimmune Disease Awareness Champion award from the Allegheny Health Network Autoimmunity Institute, AARDA, and the Race for relapsing polychondritis (“RP”) as part of the ribbon cutting ceremony and grand opening of the Allegheny Health Network’s Autoimmunity Institute (May 24th).

AARDA Announces a Collaborative Partnership with AHN and the New Autoimmunity Institute – May 25, 2018

The American Autoimmune Related Diseases Association (AARDA) is proud and honored to announce its collaborative partnership with Allegheny Health Network (AHN) and its new Autoimmunity Institute.

AARDA is the only national nonprofit to address autoimmune disease as a category of disease. There are well over 100 autoimmune diseases including psoriasis, Graves’ disease, Sjögren’s syndrome, type 1 diabetes, relapsing polychondritis, myasthenia gravis, multiple sclerosis, rheumatoid arthritis, Crohn’s disease, and lupus.

The AHN Autoimmunity Institute, with its hub at West Penn Hospital in Pittsburgh, Pennsylvania, is an unprecedented venture focused on integrated multispecialty care and multidisciplinary research for patients with all autoimmune diseases. More than a dozen specialties care for patients in a single 16,000 square foot suite. The patient care team is tightly integrated with clinical and translational research, education, training, and outreach for patients with any autoimmune diseases.

Kyle Marcelli, AARDA Ambassador, Wins Two Races at Mid-Ohio Sports Car Course and Raises Awareness about Autoimmune Disorders – May 8, 2018

Kyle Marcelli, ambassador for the American Autoimmune Related Diseases Association, Inc. (AARDA) had an extraordinary weekend winning two highly competitive races at the Mid-Ohio Sports Car Course.

On Saturday, May 5th, Kyle and his co-driver, Nate Stacy, won their second straight victory in the Continental Tire Sports Car Challenge driving the No. 60 KohR Motorsports / Roush Performance Ford Mustang GT4 as part of the return of International Motor Sports Association, LLC (IMSA) to the track that has been called “the most competitive in the U.S.”

“We are thrilled for Kyle and his race teams.  He is an accomplished driver and a wonderful ambassador in the autoimmune disease community,” said Virginia Ladd, President and Executive Director of AARDA.  “There are over a hundred autoimmune diseases, impacting approximately 50 million Americans, and Kyle continues to find innovative ways to generate public awareness about the need for autoimmune care and research by connecting with the vast motorsports audience.”

In addition to winning the Continental Tire Challenge, on Sunday, May 6th, Kyle and his co-driver, Dominik Baumann, won the IMSA WeatherTech Sports Car Championship in 3GT Racing’s No. 14 Lexus RC F GT3 in a dramatic race to the finish line.

LEXUS SCORES HISTORIC FIRST NORTH AMERICAN VICTORY FOR THE RC F GT3 – May 6, 2018

Lexus put forth the dominating performance it had been dreaming of since entering the IMSA WeatherTech SportsCar Championship GT Daytona (GTD) class in 2017, Sunday at the Mid-Ohio Sports Car Course.

It was just a matter of which of the two Lexus RC F GT3s was going to pull off the feat.

Saturday afternoon, Jack Hawksworth in the No. 15 3GT Racing Lexus RC F GT3 scored the manufacturer’s second WeatherTech Championship Motul Pole Award. While the drivers of the team’s other entry – Kyle Marcelli and Dominik Baumann in the No. 14 Lexus completed the 1-2 sweep of qualifying.

MARCELLI STORMS TO MID-OHIO CONTINENTAL TIRE CHALLENGE WIN IN IMPRESSIVE SECOND STRAIGHT VICTORY – May 5, 2018

A double-digit deficit and a sputtering fuel tank wouldn’t keep Kyle Marcelli from victory in the IMSA Continental Tire SportsCar Challenge on Saturday afternoon.

Marcelli took the reins of the No. 60 Roush Performance / KohR Motorsports Ford Mustang GT4 from co-driver Nate Stacy and found himself over 10 seconds behind leader Patrick Gallagher in the No. 8 Multimatic Motorsports Ford Mustang GT4. Marcelli wiped the deficit clean with just over three minutes remaining in the race, eventually passing Gallagher – whose co-driver Chad McCumbee put the car on pole – to steal the win.

Race For RP on Social Media

Community Health Event at @AHNtoday Autoimmunity Institute to Shine Light on Relapsing Polychondritis. Meet expert physicians and get your questions answered. #RaceforRP #AutoimmuneDisease #RelapsingPolychondritis @AARDATweets @LupusFoundation https://t.co/CtJDttPUrU

We're happy to be joined by @RPASF_Official as we continue our drive to increase awareness about #RelapsingPolychondritis at the upcoming @PVConcours on September 30th. #RaceforRP #AutoimmuneAwareness #AutoimmuneDisease https://t.co/5zOgSNhmFB

Another amazing #SaturdayShift with @FerrariSouthBay. #RaceforRP #RelapsingPolychondritis #AutoimmuneAwareness #Ferrari. https://t.co/EDIrZGeuKP for more info. @RPASF_Official